Introduction

The Center for Studies of Paramyloidosis Antonio Rodrigues de Mello (CEPARM) was founded on November 22, 1984. Its name was given in honor of Prof. Antonio Rodrigues de Mello, former professor at the Federal University of Rio de Janeiro (UFRJ) and doctor at the Institute of Neurology Medical Deolindo Couto (INDC-UFRJ).

Professor Antonio Rodrigues de Mello was a pioneer in recognizing and studying the first cases of paramyloidosis in Brazil. We owe to him the creation of the term Familial Amyloid Polyneuropathy (FAP), which was first used in a paper presented at the moment he joined the National Academy of Medicine, in 1959.

The CEPARM works with the University Hospital Clementino Fraga Filho from UFRJ (HUCFF-UFRJ), and is under the direction of Dr. Marcia Waddington Cruz since 1989. Its objectives are:

• To provide multidisciplinar assistance to patients with FAP, from diagnosis to treatment. 

• To develop basic and clinical research lines in amyloidosis, increasing the knowledge about the disease.

• Participation in therapeutic clinical trials on FAP.

• Integration with other global centers of excellence for treatment and research on FAP.

We count on a team of professionals who are always up to date on the various aspects of the disease, including physicians, nurses, geneticists, and biologists. Since its creation, the patients’s demand for the center has increased, as well as the general interest and the knowledge about the disease. It is important that the patient is bound to a center capable of diagnosing and treating this disease, that remains unknown to many professionals.

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